Missing your parents

May 20, 2013 by  
Filed under Brandy Black, Same Sex Parent

By Brandy Black

black.howard247

Do you remember the first time you truly missed someone?  Miss to the core, miss with tears and counting down the minutes until you see them again?  I remember this feeling when my wife went to China.  I ached for her to be back in my arms.  Every day there seemed to be a collection of thoughts stored for our next conversation.  I loved that feeling.  I miss the missing. This time when my wife left for 4 days, all I could think about was taking care of 3 kids all by myself.  Poor Susan left with barely a kiss goodbye.  But as time passed our daughter Sophia began to notice that she missed her mom.  Sophia would insert things that Susan might have said into our conversations, she began wearing only the clothes that Mom had picked out for her.  She cried several times before her return.  It was the first time that I have seen our daughter truly miss. It broke my heart and made me want to leave town all at once.  Even though Susan didn’t spend Mother’s day with her kids, she was appreciated from afar in ways that we have yet to see before.
Although it’s always difficult to watch my children in pain, emotional or physical, I couldn’t help but be happy that she was able to express her love.  I have been known to wear my heart on my sleeve, to feel anger, sadness, joy, fear in the most passionate ways which can be challenging at times, especially for those close to me but I feel I have been given a great gift to be able to express myself to know that I won’t let a day go by without letting those I love know what they truly mean to me.  ”Today is a good day to die” is a phrase that Native American’s use to remind themselves that every day should be lived to the fullest without regret, to feel alive in every passing moment, to be present. And so as my daughter cried for her Mom just a few hours before she was due back home, I held her hoping that she will always be lucky enough to love someone so much that she will miss them when they are away.

Siblings

May 16, 2013 by  
Filed under Brandy Black, Same Sex Parent

By Brandy Black

black.howard190

Our 16-month-old twins are walking. Penn with a fast trot and Bella, a waddle and a shake. They are both proud with every step they take and are beginning to understand things, particularly orders from their older sister. “Don’t touch my castle.” They wouldn’t dare upset her, they live for her entrance every morning, laugh at everything she does. She rules with an iron fist, getting on their level and in their face when they upset her. We stand back and debate when is best to intervene. The twins are fighting now too. They shove and hit when they don’t get their way and fight for our attention. We are officially out of the baby stages and into toddlerdom. Having been through this before I’m excited for what’s around the corner. This is one of the worst stages, impossible to go out to eat or go anywhere for that matter because Penn and Bella don’t listen. It’s not that they don’t want to, they just don’t understand the rules yet. When does that happen again? At night when all the children are tucked in their beds, Susan and I began to calculate the tough months ahead and it is daunting. Yet their little brains are emerging and it such an exciting thing to watch.

I have been waiting for the day that our oldest can actually play with her siblings and it’s been unfolding before our eyes.  Sophia made a fort underneath Penn’s crib and all three of them squeeze under with toys.  They giggle and peak-a-boo out at me.  They throw food at each other at the dinner table and I can’t resist smiling before I scold them.  We have dance parties before bed and all three of them spin around and stomp their feet.  My life is full, it’s complete with these children and I could not have known the joy that there laughter would bring me.  I have never known what it’s like to be part of a big family until now and I wouldn’t change the smell of pancakes and the screeches of joy for anything.

Although I turned in my Audi and bought a large American car, one that I never would have imagined ever owning, I proudly tote my children around and thank the universe daily that I am so lucky to be blessed with these souls.  It is a constant struggle keeping ahold of what I envision Brandy Black to be.  I get lost sometimes.  Being a parent can consume me and I fear that I’ve lost touch with who I am but I remind myself that change is inevitable and I will always be who I am, who I always have been and who I want to be in the end.

Bridezilla in the Making

May 15, 2013 by  
Filed under Same Sex Parent, Shannon Ralph

By: Shannon Ralph
wedding

Yesterday, the Minnesota House of Representatives approved gay marriage in the State of Minnesota. It’s not officially legal yet, as the Senate still has to vote on the measure on Monday. However, the Senate is considered a slam dunk. The House was the real obstacle. So…as of August 1st, Ruanita and I are able to get married.

It all happened rather quickly and quite unexpectedly. I supposed when a wall crumbles, it does so in one fell swoop and not one brick at a time. So right now, in this moment, we are seeing history unfolding. And what is a woman to do in the face of unyielding historical freedoms?

Well, plan a wedding, of course!

At least, that’s my thought on the matter. I immediately began trolling Pinterest for wedding ideas. I immediately began googling venues in Minneapolis. I immediately envisioned my two young sons in suspenders and coral bowties. I immediately planned a shopping trip with my daughter to pick out her “fancy” Disney-worthy flower girl dress. I wanted to cheer. And cry. And shout.

Ruanita, however, had a different response to the vote to legalize gay marriage. It went a little something like this:

“Oh, that’s nice.”

Seriously. That’s nice?

Within an hour of gaining (not technically until Monday, but pretty much decided yesterday) the right to marry the woman I love, I found myself incredibly pissed off at her. Like grit my teeth, mumble under my breath, give her the cold shoulder, totally passive aggressive, leave-her-sitting-alone-in-the-living-room-while-I-went-up-to-bed PISSED!

I was irrational. Borderline full-blown bitchy. In other words, I was a Bridezilla in the making.

The truth is that Ruanita’s reaction to the vote is just as valid as mine. We’ve been together for 15 1/2 years. In all that time, we’ve considered ourselves married in every sense of the word. We have a mortgage, two cars, three children, and a dog. We had a small, low-key commitment ceremony fifteen years ago. As far as we’ve been concerned—primarily, I think, because we didn’t see another option anytime in the near future—that was our wedding and we are a married couple. An old married couple with fifteen years of wrenching marital experience under our belts. We are far from blushing brides.

It’s a totally valid and reasonable way to look at this historic vote. We will no doubt get married, but Ruanita doesn’t see a reason to make a big deal out of it. I mean, we just bought a new car. Why put money into a wedding that will change absolutely nothing? Ruanita would be thrilled to get married in our back yard with only our three children and our dog in attendance. And we would be legally married. That’s the ultimate goal, right? Who needs all the hype and hoopla?

But the thing is—and I am a little embarrassed to admit this—I kind of need it. At least, I kind of want it. I come from a large family, as many of you know. I have 11 aunts and uncles and 25 first cousins on my mom’s side. I was also in a sorority in college, so I have more “sisters” than I can count on all of the fingers and toes in my family. I have sat through wedding after wedding after wedding. I have bought gifts galore. I have thrown rice and danced the funky chicken and drank more champagne than I care to admit toasting happy couples. And all the while, I wondered, Why not me? When will it be my turn? When will everyone toast to my happiness?

That day has come. Or at least it seemed so yesterday when the vote was announced. I know that I may have gone overboard pushing my sudden “wedding agenda” on Ruanita. I am sure it seemed come completely out of left field. And really, who can afford a wedding? Certainly not us. And certainly not when the argument could be made that we had our day in the sun fifteen years ago.

But legal matters. As much as we’ve said for fifteen years that it doesn’t matter and that we are just as married as everyone else, we’re not. Not a single one of my twenty-five cousins danced at my wedding. One aunt and two uncles were there, and that was it. I am not faulting them. I am just saying that fifteen years ago, a commitment ceremony was mostly unheard of. No one knew what it meant. No one understood what it was.

But a marriage? A wedding? We all know what those words mean. We all know what it means to be a wife. To be a married couple. I want to celebrate with my family and friends.

I want to be Ruanita’s wife.

So I guess we have some negotiating to do. I have no idea what our eventual wedding will look like. Perhaps it will be a Justice of the Peace in our back yard. I don’t know. I just know that I want what all the rest of you take for granted. I want to marry the woman I love.

And I want to dance at my wedding.

Farewell to the Ta-Tas

By Tanya Dodd-Hise

Dear Boobies,

Well, my old faithful friends, this is it. Our time has come to an end. After years of pretty much detesting you because of your size, I am finding myself saddened that your end is at hand. Let’s think back to our long history that we’ve had…

I was about 9 years old when you decided to make your presence known. I was in the fourth grade, and not too sure about this whole bra thing. I remember being among Kristal Hodge and Alisha Harvey as one who had to endure teasing for having big boobies. Great. See the internal scarring you created in my young, tender psyche??

You did, however, serve my babies fairly well during their first months, by providing them nutrition, despite becoming larger than even I was prepared to deal with – can we say “ouch?”

Over the years, as you have stayed steady between a C-cup and D-cup, depending on my level of fatness at the time, you have been squeezed and smashed into various stages of uni-boob by sports bras galore, while still managing to pound my chest while running or get in the way of my golf swing. Now that you will no longer be with me, I am hoping that my runs will be swifter and my golf game won’t suck near as bad.

But now, our love-hate relationship is going to come to an end. I have no choice. You are sick and trying to kill me, and I can’t have that. But if it makes you feel any better as you face your imminent demise, you can die happy knowing that I have no intentions of replacing you. Tattoos will one day lie where you formerly resided, and nothing else. And while I spent many years trying to figure out how to smash you into a smaller space, wish that you were smaller, and try to workout until you became more muscular than fatty, I face tomorrow with a sadness that you will be gone forever. You have been a part of me for 42 years, and like anything, it will be tough waking up to look down to your absence.

So goodbye Tanya’s Ta-Tas. Thank you for the life we have shared. Damn you for trying to kill me. I didn’t dislike you THAT much!

Sincerely,
Tanya

boobs

The Surgeon

By Tanya Dodd-Hise

It’s April first.  The day after Easter, where we spent a nice weekend out of town visiting with Erikka’s extended family, like we do every year.  Like I hope to continue to do for many years to come.  Today is April Fool’s Day.  I was SO hoping that when I woke up, all of this cancer business would have been a dream or some bad April Fool’s joke.  But no.  Today brought me no joking or pranks.  Today brought me an 11 AM appointment at the surgeon’s office; the one whom I already knew from previous procedures with loved ones.

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We loaded up and went to Dr. Carolyn Garner’s office right on time this morning, where I was filled with anxiety, ready to see what was coming up for me next. After the obligatory blood pressure reading, weight report, and listing of meds that I take, we waited a few more minutes for the doc to come get us. Soon she was there at the door, with greetings and catching up, going on about how big the baby has gotten since she had last seen her (Harrison was 4 weeks old when this doctor performed surgery on Erikka). She then ushered us into her office-slash-examining room. This is where she does minimal exams, but mostly consults with patients; we had been in there twice before.

Her first questions were mainly wanting to know how and when I discovered the mass – was it found on a routine mammogram or did I find it myself? So I told her the details of how I found it, and what transpired from there. She said, at that point, that “today, unfortunately, we don’t have anything good to talk about.” Yeah. I know. I handed over the large envelope that had pathology reports from my biopsies, reports from mammograms past and present, and two CDs with mammogram images from 2008 and 2013, for comparison. I told her that I have had the genetics testing done, and that they had put a surgical rush on it, so hopefully the results would be back by the end of the week. I then told her that regardless of the results, I wanted her to take both breasts off. She nodded and said, “Okay. I agree.” I was a little surprised that she was so agreeable so fast! I proceeded to tell her that I understand, being a Medicaid patient, that there are stipulations based on the genetics testing to what will be paid; but I don’t care. I don’t ever want to go through this again. She said that given my family history, it will probably be paid for, but in the case that it isn’t, they will have me sign a form that basically states that IF it isn’t paid by Medicaid, then I will be responsible for the difference. Fine. I will sign it. My next question: When can we do this? She said, “Well, I can’t do it today.” Ha! Funny lady. “I do breast surgeries on Wednesdays, so I can do it this Wednesday, if you want. Or I can do it next Wednesday.” So after a moment of thinking, I said, “Next Wednesday it is.” Within a few minutes, my surgery was scheduled for Wednesday, April 10th at Denton Regional Hospital: a Radical Modified Mastectomy on the left side, and a Simple Mastectomy on the right side.

I then went on to tell her that I do not want reconstruction. I am not interested in having fake breasts, as I am not a girly-girl who really cares about my curves; to which she responded, “I understand.” From there we discussed the details about the surgery: how she will remove the breasts (how the cuts will be done), the fact that she will be removing ALL of the lymph nodes on the right side under my arm, and what the scars should look like, given the fact that I am not doing reconstruction. I will basically have scars across each side of my chest, and no nipples.

post-mastectomy

I can either have them tattooed on, or I can have other cool looking tattoos done if I don’t want to leave it plain. We discussed the time frames: length of stay in hospital, recovery time, visit to oncologist, and approximate time for chemo to begin. Radiation will probably not be necessary, unless the cancer has invaded the chest wall. She said I should be in the hospital for one night – what??!! One night?? Her response to my surprise? “Welcome to drive-thru surgery.” I’m not sure if it is a Medicaid thing or just an insurance thing. When my mom had her mastectomy and reconstruction, they tried to send her home after one night; to which I bitched and told them that I REFUSED to take her home that early….so they kept her a second night. So the plan is one night, however, I typically get a fever every time I have surgery, and end up having to stay an extra night. She said that recovery time is about two weeks, but I find that highly optimistic. I’m betting it’s more along the lines of 2-4 weeks. That’s 2-4 weeks of trying to recover a range-of-motion in my arms. That’s 2-4 weeks unable to drive, raise my arms above chest level, pick up my sweet baby girl, work out. She said that after that time, I can go back to cardio activities, but no weights for a while. I will have to find an oncologist and plan to go a week or two after my surgery; and will likely begin chemo 4-6 weeks after surgery, depending on how the healing is going.

After that, she took a few minutes to examine the “affected breast.” She barely touched me and responded, “Oh wow. That really IS big.” Um, yes, I know. After her exam, she told me again that she thought that mastectomy of both sides was definitely the way to go, and she would tell her own sister the very same thing. Soon we were on our way out with paperwork to take when I go to register. By the time we reached the Jeep and got loaded up, we were both in a much more somber place. As I tried to discuss some of the details of surgery day (who can keep kids, etc.), my beautiful and strong wife became a little overcome by emotion. This was the first time that I had seen her show anything but positive words or strength through all of this. But yeah. It hit us both. This was overwhelming for her – for us. And as the day went on, it became way too “real” for me. This is really happening. I REALLY have cancer.

And I’m not going to wake up and it just be a dream.

The Birds and the Bees and the Sperm Donor

April 30, 2013 by  
Filed under Same Sex Parent, Shannon Ralph

By: Shannon Ralph

birds

Shannon climbed under the covers next to her eldest son and smiled at him. “I think we need to talk.”

“About what?”

Lucas was ten years old and had long ago adopted the habit of slipping upstairs with his mama after his younger siblings were sound asleep in their own beds.

It was their time. It was time Shannon looked forward to every night. Often, Lucas did nothing more than lie on her shoulder and watch her play Sudoku on the iPad, occasionally offering advice on where she could place her next 4. Other times, they snuggled and talked about their day.

Lucas’ other mom, Ruanita, worked evenings. She got the kids when they were bright-eyed and bushy-tailed in the morning. Shannon got them after a long day of school and work when all four of them—mama included—were exhausted and crabby and whiny and hungry. She got her three children when homework needed to be completed and bodies needed to scrubbed of the day’s dust and muck and arguments over “gross” dinners needed to play out in their entireties. Bedtime stories had to be read. Goodnight kisses had be doled out. And then given again. And one more time, just for good measure.

When all the work of the day was complete and Shannon finally dragged herself upstairs to climb into the memory-foam-covered bed she so adored, her quiet time with her oldest child was a welcome respite. A bright point of calm in an otherwise harried day.

On this particular evening, Shannon decided the time had come to have the talk she had been putting off for weeks. The talk. Tonight would be the night.

Everyone had been telling her for months she needed to have the talk with Lucas. “He’s ten years old. He’s talking about these things.” “Do you want him to get his information about sex from his buddies?” “You need to talk about sex before he’s having sex.”

Shannon could not even fathom her ten-year-old child thinking about—must less having—sex. He still slept with a stuffed “doggie” every night, for God’s sake!

Shannon and her partner, Ruanita, had decided some time ago that Shannon was better equipped to have the talk with their children. Ruanita was a mental health therapist. A professional psychoanalyst—a vocation that came in handy as she navigated the day-to-day trials and tribulations of marriage and parenthood. Though she had the very best of intentions, however, conversations of the kind that was about to unfold were not exactly her forte. She examined things in minute detail. She tended to lecture rather than discuss. And she talked a lot. Much more than was necessary. Much more than a ten-year-old could comprehend. After sitting through some lengthy and rather uncomfortable conversations in the past, Shannon and Ruanita came to the mutually agreed upon decision that Shannon alone would handle the talk.

“Well, um,” Shannon began. “I want to talk to you about something. Something you are old enough to learn about.”

Lucas’ face lit up with a dimpled smile. He liked being told he was old enough for anything and everything. “What?” he asked.

“Well, um, let me ask you a question first.”

“Okay.”

“Well, um, have you ever heard of the word sperm donor before?”

Lucas fiddled with the blanket lying on his chest. “Umm…not really.”

“Well, um.” Jesus Christ, do I have to start every sentence with ‘well, um’? “Let’s back up. Have you ever had anyone tell you that you can’t have two moms? That it doesn’t work that way?”

He shook his head. Shannon saw a flash of fear in his brilliant blue eyes as he appeared to comprehend the direction their discussion was headed.

“Well, um.” Shit, there I go again. “You know that it takes a man and a woman to have a baby, right?”

Lucas nodded mutely, his mouth hanging open in thinly-veiled terror.

“So maybe you’ve wondered how it is that your mom and I were able to have you and your brother and sister?”

Lucas shook his dishwater-blonde head. “Not really.”

“Well, it takes a male part—the sperm—and a female part—the egg—to have a baby. When those two come together, they make a baby. Well, um… (I’m a writer, for God’s sake! When did I become so freaking illiterate?) When your mom and I decided we wanted to have you, we didn’t have any sperm, obviously, so we went to something called a sperm bank. Have you ever heard of that?”

“Umm…no.” Lucas smiled. He always smiled when he was nervous. “Do we have to talk about this?”

“I just think you’re old enough to know some things. Do your friends ever talk about where babies come from?”

Shannon envisioned Lucas’ bespectacled group of 4th grade cronies. Geeks. Nerds. Whatever noun you chose, they were your typical science-loving, Star Wars-quoting, video-game-adoring, fart-joke-rendering, girl-repelling, lactose-intolerant, asthmatic group of highly intellectual, socially inadequate boys. Three of the four, Lucas included, sang in the Metropolitan Boys Choir. Four of the four were competing in their school’s completely optional, non-obligatory, doesn’t-affect-your-grade Science Fair.

“Do your friends ever talk about…well, you know….sex?”

“Do we have to talk about this?”

“I think we should.”

“No, mom, we don’t talk about sex or babies.”

Shannon believed him. This was the child who, just the day before, had said to her, “Hey mom, Sully and I have a theory about how water molecules are held together…” These were the things he and his buddies discussed on the playground at recess.

“Okay. Well, when two women want to have a baby, they go to a sperm bank and borrow sperm from a man who donated it. That man is a donor. You have a donor out there and your brother and sister both have donors. It’s all anonymous, so we know very little about your donor aside from medical history and some basic description.”

“Okay,” Lucas responded anxiously. “Are we done?”

“Do you want to be done?”

“Yes, please.”

“Okay, we don’t have to talk about this now.” Perhaps having your first conversation about sex while lying in bed with your mother is not ideal. Perhaps, just maybe, Shannon was scarring him for life; essentially dooming all his future sexual encounters to miserable, soul-crushing failure. As she considered the bill for her son’s lengthy and expensive future psychoanalysis—she wondered briefly if Ruanita’s connections in the mental health field could secure them a good deal—Shannon said, “I just want to say one more thing and then we can be done.”

Lucas groaned. He rolled over on his side and pulled the cover up to his chin, bracing himself for whatever verbal vomitus his mother intended to inflict on him this time. “Okay,” he muttered. “What?”

“I just want you to know that you can always come to your mom and me with questions.”

He nodded vigorously, obviously hoping that the harder he nodded, the quicker the conversation would come to an end.

“If you ever have questions about sex or babies or donors or…anything…I want you to come to us. You know you can talk to us, right?”

Lucas nodded again, much more earnestly than before. Shannon was concerned he would dislocate something that would prove vital to his future as a Pulitzer prize-winning physicist living in his parents’ basement, so she decided to put him out of his misery and end the conversation there.

She grabbed the iPad from her nightstand and turned it on. “So,” she said. “Should I play sudoku or mahjong tonight?”

“Sudoku.” Lucas smiled, relief evident in his blue eyes. “Definitely Sudoku.” He laid his head on Shannon’s shoulder. “Mom, can we never talk about that again?”

Shannon breathed a sigh of relief. She had done it. She had broached the topic with her eldest son; had introduced the word “sperm donor” despite his mortification. It was not done perfectly–or perhaps even remotely adequately–but she had done it. Shannon had done the bare minimum required of any responsible parent. And she found herself oddly content with the bare minimum. Like parents the world over, it was now time to sit back and observe the fall-out from her less than stellar parenting.

“Sure, honey,” she relied. “We’re done.”

The Cause

April 29, 2013 by  
Filed under Same Sex Parent, Tanya Dodd-Hise

By Tanya Dodd-Hise

It is very odd to lie flat on my back these days.  If I do, and I put my hands behind my head, then it makes the tumor in my breast very prominent and noticeable, even if just to me.  It is fairly large in size, so whenever I lay down, it is a constant reminder of what lies just beneath the surface.  Do you know how strange it is to walk around knowing that there is this thing with me, all the time, that I can touch and feel…a thing that has the potential to kill me?  I will tell you.  It is the most peculiar, uncomfortable, uneasy feeling that I have ever had in my life.  EVER.

As the days pass by, waiting for things to start moving and happening, it gives me a lot of time to think.  I have yet to have the inner dialogue of, “Oh God, why ME??  Woe is me and why would you do this to me, Lord??”  No, that hasn’t happened.  But I HAVE wondered what I could have done differently over the course of my previous 42 years to prevent this.  Did all of those years of smoking contribute to my cancer?  Did my miscarriages also raise my risk of developing this particular cancer?  I know that both of these things are supposedly risk factors that can increase a woman’s chances – but did they in my case?  I will never know that.  Did being overweight for so many years increase my chances?  Or being sedentary for so long?  Or perhaps the deoderant that I use – did using a rollon instead of a spray do it?  Yeah, there are all kinds of wacky theories out there.  But seriously, I have to sit and wonder what I did to contribute to the development and discovery of cancer in my body – and will I develop it somewhere else, too?

breast-cancer21

There is also the possibility that I inherited the gene that producees breast cancer. After all, my mother has had it. Her only sister has had it. I think they had maternal aunts with it. One of my father’s sisters has had it. I got whammied on both sides on the gene pool.

Tomorrow (Wednesday), I go back to UT Southwestern to have genetics draw blood and begin the process of testing me for the BRCA1 and BRCA2 genes. My part is simple – they draw a vial of blood and send it off. The hard part is waiting for the results – 14 days. This, however, will help the surgeon determine if she should take just the affected breast, or preventatively take both (which is what I want). Even if I don’t test positive for the gene, I want to have both breasts removed, so that I don’t ever have to go through this again. For those who do not know, the BRCA1 and BRCA2 genes are known as tumor suppressors, and are linked to hereditary breast and ovarian cancers (according the the National Cancer Instiitute). I read some interesting information regarding the genes and testing, which helped me understand it more.

Both men and women who have harmful BRCA1 or BRCA2 mutations may be at increased risk of other cancers – NOT just breast or ovarian. Women who inherit a harmful mutation has an increased risk of developing breast and/or ovarian cancer at an early age (meaning before menopause). Men who inherit harmful BRCA1, in particular, also have an increased risk of breast cancer, and possibly, pancreatic, testicular, or prostate cancers. Lovely.

I believe that the foundation is covering my genetics testing, or they will bill to Medicaid once I get coverage. I was, however, encouraged to hear that if I am positive for either the BRCA1 or BRCA2, then there is a chance that the foundation will also bring my boys in and perform the test on them. It would be very beneficial to know if either of them are also positive for these genes, so that they can be proactive in their health to do whatever they need to prevent getting an active cancer diagnosis. Plus, Nicholas already has a baby girl, whom can also inherit this gene if her daddy is positive for it; something that I would HATE to see happen!

So I guess that if the tests come back as positive for this, the “breast cancer gene,” then that can pretty much explain the cause of my cancer. If not, I guess I will never know what caused it or how I possibly contributed. All I know is that it is here now, but I want it gone. Soon I will begin the fight for my life, and I am so truly grateful for every well wish, every email or Facebook message, every prayer, every offer for help and/or babysitting, and every dollar that has been donated to help during this time that I won’t be able to work. I truly believe that together we can and will triumph over this horrible mutation, and live to write about it all!

The Consultation

By: Tanya Dodd-Hise

Today has been a miserable day for me, feeling like my throat is on fire and a cough that just won’t stop.  I finally had to give in yesterday and admit that hey, I must really be sick, so I threw in the towel and went to the doctor this afternoon.  Throat infection, probably stemming from allergies.  Damn allergies.  I did, however, have a fun morning with my friend & hairdresser for years, Liz.  She so graciously gave me a cut and color – and BOY did she give me color!  I left with blonde and two shades of pink!  SO awesome…I love her so much.

pink

But let’s go back to yesterday.

I had an appointment at Moncrief Cancer Institute yesterday at 1:30 PM, in Ft. Worth.  Oh THAT was a fun drive.  There is construction EVERYWHERE between here and there, so the normally 45 minute drive took me an hour and a half.  Good times.  But it was necessary and definitely important to this whole process, so I wasn’t going to bitch.

The first part of the appointment was brief, spent with a nice chick named Yesenia, filling out paperwork for Texas Medicaid.  I gave her all of the documents that they said that I needed to bring, and she told me that it would take 6-10 business days for me to get into the Medicaid system and have an ID# – but she said that I DO qualify.  Huge relief #1.  She explained to me that it is good for six months, and if I am still in treatment at that time, then all I had to do is renew it by having my treating doctor fill out a form for me.  Easy peasy.  She also explained that this particular Medicaid program, while it will cover most of my treatment, there are some things that it will not cover, and only covers three prescriptions each month.  So I will have to be careful to pick and choose wisely which ones to use it for – I remember when my mom went through treatment, her anti-nausea meds were OMG expensive, even on her good insurance.  And you can guaran-damn-tee that I am gonna want the good anti-nausea drugs!

The next part of the appointment was longer, spent with one of the nurse caseworkers named Edna.  We discussed the next step, which was a consultation with a surgeon.  She said that a preliminary staging would probably put me at a 2, but that my official cancer stage wouldn’t be given until after my surgery.  She had a piece of paper that had the surgeon’s name on it that they were referring me to, and I could read it upside down.  I thought I had read it wrong, so I asked, “Does that say Dr. Carolyn Garner?”  She said, “yes?”  I was like, “Out of Denton Regional?  Cute little soft-spoken redheaded doctor?”  She said, “yes?”  I said, “Well that can’t be right.  She is an endocrinologist.  Does thyroid surgery.  I know her.  My friends know her.  My mother just had her thyroid removed by her about six weeks ago!”  Edna looked at me and said that she has dual specialties:  endocrinology surgeries and breast surgeries.  Ohmygod seriously?  THAT is awesome!  Huge relief #2.  I would totally go to her in a heartbeat, plus I am already in her system because I had a consultation with her about my own thyroid last year, when I briefly had insurance.  That took a huge weight off of my back!  I would definitely rather have surgery at one of the bigger hospitals than at Denton Regional, but I trust this surgeon, so I know it will all be good.

Once we got this part out of the way, we discussed various things regarding treatment, and what to expect as best that I can.  She said that because of my age and family history, that they want to do genetic testing on me, for the BRAC gene.  She said that they want to do it right away, so that the results can go to the surgeon, and we can make a definitive decision regarding surgery.  If I am positive for the gene, then I have the option of having both breasts removed and it would be covered completely; while if I am negative, then only the affected breast is eligible for surgery and reconstruction.  If I am positive, they will also test my two boys for the gene; because men can get it, too, as well as pass to their daughters (and one of my boys already has one of those!).  If I am negative, I could still have the unaffected breast removed electively, but it would likely be out of pocket.  I have been saying, for many years now, that if I ever get hit with this type of cancer, then I would for sure want to have them both removed.  And I still say that now.  I don’t want to ever go through this again!  Take them both, take them now.

So now I am expecting a call from the genetics department.  She also said that I would get a call from one of their social workers, who will keep connected with me during the course of my treatment, to make sure that I have everything and all of the support that I need.  They have support groups.  They will be mailing me an A to Z book about breast cancer, since they were out of it yesterday while I was there.  I gotta say, this place, Moncrief Cancer Institute, is an amazing place.  Nothing but positive people, pushing calm, peacefulness that is full of hope and light.  Next week on Wednesday, I am supposed to call and check the status of my Medicaid.  If I am in the system, I can get the ID# and make my appointment with Dr. Garner.  From what I can tell, with genetics testing (and waiting the 14 days for the results) and any additional testing that Dr. Garner may want to do, I will likely be having surgery around mid-April.

With what I have had to take in during this short time so far, I am glad that it is finally moving along.  My biggest fear, in the beginning, was the fact that I had no insurance.  I am SO thankful for the programs that exist, for the knowledge to find them, for a great doctor’s office to direct me, and for the grants & donations that fund these programs.  I have had amazing support from family and friends, both near and far, in person and across the world of Facebook.  My dear friend, Madge, stepped up immediately and set up a fundraising site online for people to donate towards – and after three days she has gotten over $3000!  I am overwhelmed and blown away by the humanity of my friends, her friends, and many people who don’t know me at all yet have graciously given a donation!  This money will help SO much in the absence of my income, and will help pay the bills that I usually cover, as well as gas to and from all of the countless appointments.  Thank you just doesn’t seem like enough.  I am humbled and honored by each person who selflessly gave, and will keep it with me always so that I can someday pay it forward.

Onward we go.  One foot in front of the other.  One step at a time, one day at a time.

The Pathology

April 23, 2013 by  
Filed under Same Sex Parent, Tanya Dodd-Hise

By: Tanya Dodd-Hise

It’s Monday, March 18th.  My sweet Noah’s 13th birthday.  I can’t believe this kid is already thirteen; nor can I believe how crazy I am about him (despite him being 13…hahaha)!  It is also the day that I hope to hear back from the doctor, all the while knowing that it could very likely be tomorrow.  By about 3 PM, I have given up most hopes of getting a phone call today with my biopsy results, so I start planning for a short trip to the store before Noah gets out of school at 4 PM.  I still feel lousy, but I need to make Noah’s birthday dinner, so I change clothes and head off with my list to the Kroger around the corner.  It’s 3:45 PM, and I am two steps out of my Jeep when my phone rings; a familiar Dallas number pops up and I stop, frozen in my tracks.

“This is Tanya.”

“Hi Tanya.  This is Dr. Seiler at UT Southwestern Medical Center.  Do you have a minute?”

Really?  No.  Do I have a minute?  Like I’m going to say, “Now isn’t a good time to find out about my cancer.  Can I call you back?”  Sorry.  Inner sarcasm comes out during times of high stress.

“Of course!  Let me jump back into my Jeep and turn some air on.”

From there, his calm, soothing voice led me through every step of the pathology report that he has so far.  He went in the same order that he performed the biopsies:

1.  The Stereotactic Biopsy of calcifications on the left breast – OK.  Fibroadenoma.  Benign changes.

2.  The mass on the right breast – OK.  A stromal hyperplasia.  Also benign changes.

3.  The mass on the left breast (the one that I felt) – Cancer.  Invasive Ductal Carcinoma In Situ.  The most common form of breast cancer, he said.  In the ducts and outside of the ducts.  Wonderful.

4.  The lymph node area of the left armpit – Cancer.

4.0.4

Big, deep breath.  Okay.  Do we have a stage yet?  No.  The specimens are being sent off for further testing and staging.  It is Grade 3, which is the highest grade – and the worst.  It got a score of 8 out of 9, which I guess is bad.  My next step, he tells me, is to see a surgeon.  They might do more testing (like MRIs and xrays), but they will formulate a treatment plan and decide if surgery will be needed first or chemotherapy first.  He answered all of my questions, and made sure to ask me at the end if I had any OTHER questions.

I then spoke with Amanda, the coordinator at UT Southwestern with the nurses at Moncrief Cancer Center, the program that funded my mammograms, sonograms, and biopsies.  She put me on hold, contacted my nurse there, and came back to tell me that they will begin the process of Medicaid paperwork for me, and not to worry about any of it for the time being.  She said that I would get a call the next day from the nurse handling my case, and they would get me in to finish up paperwork, and it would take 6-10 business days to get an active Medicaid number.  Once I have that, I can make the appointment with a surgeon that they refer me to, and hopefully get a good plan in place for treatment.  More waiting.

I know that if I had insurance, I would just pick up the phone to the surgeon of my choice (who accepted my plan, of course), and make the appointment.  Things are different for the non-insured, but thankfully, I am no longer panicked at the thought of having to self-pay EVERYTHING.  Now, I know that Medicaid does not pay for everything, and I will have out-of-pocket expenses; and thankfully I have wonderful people in my life (and in others’ lives) who have already started a fund for that!  And if anyone is wondering how I am able to get Medicaid, it is because we live in a state that does not recognize our marriage (as well as on a federal level).  Therefore, Erikka, in the eyes of Texas, is considered my roommate; and I am considered a single mother of two children at home (since I legally adopted Harrison).  Crazy, huh?

It just keeps coming back to me that all of those who are opposed to same-sex marriage, for whatever messed up reason, have no clue how it can, and DOES, hurt real people, in real families to keep a “separate but equal” mentality anymore.  The Defense of Marriage Act has no good merits, except to discriminate and divide.  Having marriage legal in all states for some people, yet only legal in certain states for others, will do nothing but complicate matters large and small, on many levels.

And breast cancer is no small matter.

Terroristic Threatening

April 23, 2013 by  
Filed under Same Sex Parent, Shannon Ralph

By: Shannon Ralph

siren

Shhhh.
Was that a siren?

I’m hiding from the police. I expect them to knock on my door any minute now. See, I kind of did something bad this morning. I am not entirely sure it was illegal, but it was at least immoral and likely illegal. It could probably have been considered terroristic threatening without much stretching of the imagination. And that’s illegal, right?

Hence, my fear of sirens.

I threatened my son this morning. I did not threaten him with a loss of privileges like most parents do. I did not threaten to tell his other mom on him like many parents do. I did not threaten to send him to bed without dinner like some parents do. I think my exact words were…

Don’t make me throw you down these stairs, Nicholas.

Yes, I threatened to fling my youngest son down a flight of stairs this morning. Would I have actually done it? Unlikely. But did I seriously consider it in the heat of the moment? Absolutely.

Allow me to explain.

Nicholas slept upstairs in my bedroom last night, as usual. When the alarm went off this morning, I got up. Ruanita got up. Sophie and Lucas reluctantly got up. And Nicholas refused.

We went downstairs. The kids ate breakfast. I washed my hair. Ruanita fed the dog. Nicholas remained asleep upstairs.

I stood at the foot of the stairs yelling for him to come down, to no avail. Ruanita stood at the foot of stairs yelling louder than I did for him to come down, and he still did not come down.

I had taken the day off work to go car shopping with Ruanita. I was practically dragging her there kicking and screaming. It had taken every coercive drop of energy I could muster to convince her to go get a new car today. The kids had to go school. Today was my only shot at a new car. (And if the lousy $400 we got for our barely limping minivan on trade-in was any indication, we desperately needed a new car.) Unless he was missing a limb or there was blood seeping from a life-threatening head or trunk injury (extremity wounds would not have been serious enough), Nicholas had to go to school. It was not a day for pussy-footing around.

So I trudged upstairs with dripping hair to rouse my youngest son. I found him lying in the oversized chair in my bedroom, hiding under the covers. I pulled the covers off and asked him to kindly remove himself from the chair. He refused to open his eyes and did not budge.

I lifted him from the chair and stood him on the floor. His body went completely limp. When I tried to stand him again, he wiggled out of my grip and climbed back into the chair. We repeated this process three times until I finally realized (she can be taught!) that is was an exercise in futility.

Grumbling under my breath, I lifted Nicholas from the chair again, and this time carried him to the landing at the top of the stairs. Again, he went limp. Yet again he nimbly scrambled back to the chair.

Now, had I been a stronger person, I would have simply carried him down the stairs. I could not, however, because 1.) I have an extremely irrational but irrefutable fear of stairs, because 2.) I have bad knees and have convinced myself that they will certainly give out on me one day while walking down a giant flight of stairs and I will plummet to an untimely and ungraceful death. So carrying Nicholas down the stairs was out of the question.

I, however, like to consider myself smarter than the average first grader, so I once again carried him to the landing at the top of the steps. This time, however, I spread my arms and legs wide, blocking the doorway to the bedroom so Nicholas could not flee to the chair.

Realizing that he had been outsmarted by a greater intellect than his own, Nicholas wrapped his skinny arms around the stairway handrail and began to cry. Strangely, there were no actual tears involved in his cry. It merely included a rather odd-looking facial contortion and an ear-splitting wail.

It was at that moment—spread eagle in the doorway to my bedroom facing imminent defeat—that I made the barely conscious decision to resort to terroristic threatening.

Don’t make me throw you down these stairs, Nicholas.

Am I proud? No. Was it one of my finest mommy moments? No. Am I the owner of a shiny new Honda Pilot? Yes.

Shhhh.
Was that a siren?

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